being in 9th grade and being cast in this play as a character who didn't exist--the teacher who was directing planned to divide up lines between my character and another character. During vocal warmups every cast member had to say one of their lines and we would all repeat it, but this made me feel awful because I didn't know which lines were mine, because we hadn't gotten to blocking that scene yet. I didn't want to steal someone else's lines. I dreaded warmups so much, because of this one moment, that I tended to skip rehearsals and go to the art room and hang out with Joan. Eventually I got caught, no real harm done; I explained to the teacher several years later, once I could talk to her.
being in 9th grade and always being told my mom to wash my face in the morning and brush my teeth with the electric toothbrush. I didn't wash my face usually--it just happened--I couldn't really explain why I dreaded the sensation of putting water on my face. I just avoided it and felt guilty because I knew it was my fault I didn't have better skin. The electric toothbrush was so loud and full of movement that it filled my head with compulsive horrible thoughts; I usually used it but sometimes I had to turn it off or use a manual toothbrush.
same with toilets (always).
being in 7th grade and having to go to tae kwon do lessons. It started with this ordeal of "conditioning"--running in place, holding weights, while loud music played. It wasn't the exercise, I liked other parts of tae kwon do, but the combination of the movement and the loud music caused all the compulsive horrible thoughts. On the mornings of lesson days, at school, I'd write these little rhyming poems that I could repeat over and over in my head during conditioning to try to keep from having the thoughts. Or I'd memorize certain Yeats poems, which had a good rhythm.
why didn't I tell my teacher to just turn the music off? I guess for other people the music probably helps. It just didn't occur to me that the music was anything other than part of life. Maybe I thought that the compulsive thoughts were part of what conditioning was supposed to be like. It didn't occur to me to say it out loud.
I remember beautiful things like all the time I spent figuring out how to trace words in my head. Like, should I connect the letters? Tracing every word that I thought or heard, like in sixth or seventh grade I think this was. It took time but I had time.
But I also remember that I didn't just tell Mrs. M. that I was upset because I felt like I was stealing other people's lines. Or that I tended to just avoid loud things without thinking and couldn't explain why. And I knew my diagnosis for a lot of these incidents. It's just I didn't know how to talk, or that no one was there to tell me what it meant.
Showing posts with label middle school. Show all posts
Showing posts with label middle school. Show all posts
25 January, 2011
12 November, 2010
11. My Year of Flops
At the Onion AV Club, Nathan Rabin writes a series (which is now also a book) called My Year of Flops. Rabin watches very unsuccessful movies and rates them as Failure, Fiasco, or Secret Success. I am interested in the idea of people being "flops." A good example is Stephen, described above. Like most people with significant developmental disabilities, Stephen is written off by many normal humans; and a professional could have a great time studying Stephen and writing about all the "social skills" he "lacks." However, Stephen does connect to people, does affect other people positively, and is well-liked. Stephen is a Secret Success.
The opposite of flops, of course, are blockbusters. Some normal people--and I would argue that these are the people who could actually be termed "superneurotypical"--come off to other normal people as really nice, trustworthy, decent, competent, etc. They just hit all the buttons that make normal people feel at home. (And people with autism who are trying to fit in may try to have the same reaction to blockbusters that normal people do.) Blockbusters can be rated as Success, Fiasco, or Secret Failure.
One time when I was thirteen, all the Spanish classes in my grade went on a field trip to a Mexican restaurant. The table where my only friend was sitting was full, so I sat at the nearest table to her. The people who sat down at my table included a boy named Michael who was a Secret Failure. Michael asked why I had to be sitting at their table. I responded "I thought it would be amusing" (this is hard to explain but it's kind of similar to when George Takei said that he wanted to have sex with Tim Hardaway--the idea being that if someone thinks you're disgusting, you try to take ownership of that).
Michael said, "Well, I think it would be amusing if you fell out through that window." (There was a large plate glass window across the restaurant.) I tried to distract myself by writing a poem on the flyleaf of the book I was reading, but Michael carried on in this vein for the entire meal, describing different ways that I could die or become injured. Later my mom made the mistake of repeating this to the mom of another kid from my school. The other mom replied, "I believe that Amanda thinks she's telling the truth, but Michael is a really nice boy."
Michael went on to go to Georgetown and will probably live the rest of his life without anyone finding out he is a failure. I on the other hand actually think of my younger self as a failure for doing things like using the word "amusing" when a more standard word for someone my age would have been "funny." I also used the words "quite" and "suppose." Seriously! What did I think was going to happen?
In addition to using the wrong words, I was also kind of a douche at that age. For example I did (and still do sometimes) make jokes about things that other people were sensitive about. I didn't think about how this would hurt someone's feelings, and I still feel bad when it happens now. But I've never told anyone that I think they should fall out a glass window, so I think I am fairly categorized as a fiasco, not a failure, even though I am a flop.
The opposite of flops, of course, are blockbusters. Some normal people--and I would argue that these are the people who could actually be termed "superneurotypical"--come off to other normal people as really nice, trustworthy, decent, competent, etc. They just hit all the buttons that make normal people feel at home. (And people with autism who are trying to fit in may try to have the same reaction to blockbusters that normal people do.) Blockbusters can be rated as Success, Fiasco, or Secret Failure.
One time when I was thirteen, all the Spanish classes in my grade went on a field trip to a Mexican restaurant. The table where my only friend was sitting was full, so I sat at the nearest table to her. The people who sat down at my table included a boy named Michael who was a Secret Failure. Michael asked why I had to be sitting at their table. I responded "I thought it would be amusing" (this is hard to explain but it's kind of similar to when George Takei said that he wanted to have sex with Tim Hardaway--the idea being that if someone thinks you're disgusting, you try to take ownership of that).
Michael said, "Well, I think it would be amusing if you fell out through that window." (There was a large plate glass window across the restaurant.) I tried to distract myself by writing a poem on the flyleaf of the book I was reading, but Michael carried on in this vein for the entire meal, describing different ways that I could die or become injured. Later my mom made the mistake of repeating this to the mom of another kid from my school. The other mom replied, "I believe that Amanda thinks she's telling the truth, but Michael is a really nice boy."
Michael went on to go to Georgetown and will probably live the rest of his life without anyone finding out he is a failure. I on the other hand actually think of my younger self as a failure for doing things like using the word "amusing" when a more standard word for someone my age would have been "funny." I also used the words "quite" and "suppose." Seriously! What did I think was going to happen?
In addition to using the wrong words, I was also kind of a douche at that age. For example I did (and still do sometimes) make jokes about things that other people were sensitive about. I didn't think about how this would hurt someone's feelings, and I still feel bad when it happens now. But I've never told anyone that I think they should fall out a glass window, so I think I am fairly categorized as a fiasco, not a failure, even though I am a flop.
Labels:
asd,
bullying,
middle school,
relationships,
social skills don't exist
31 July, 2010
Tangerine
When I was a kid I remember encountering fantasy books that took place in societies where people with blond hair and pale skin were considered to be unattractive. Early on, before the character development, the blond main character would be beating him- or herself up for being so "ugly" and "freakish." I enjoyed those books at the time, but in retrospect it strikes me as cheating because the reader gets to enjoy the angst of having the main character think that they're ugly, but doesn't actually have to identify with a character who has dark skin or dark hair, the traits that are considered undesirable in real life.
I just finished reading Tangerine by Edward Bloor, a young adult book that does the same thing with disability. The main character, Paul, is said to be "legally blind" but the implication is that this either hasn't been true since he was a kid, or that it doesn't really affect him that much. People react negatively to Paul's label of disability, and his glasses (which are apparently unusual-looking), but there are no instances in the whole book of Paul not being able to do something, or needing help, because of his vision. He describes things he sees which are quite far away (for example, birds flying and fields that he sees out the car window). His disability seems to exist in name only.
I've had this book since I was 14, because I bought it and never read it. I finally decided to take it to camp so it would stop crowding up my bookcase, and when I opened it to a random page I was surprised to see the word "IEP." It turns out that Paul's IEP is an important plot point--which is interesting, right? When I had an IEP I didn't know I had one, so I don't know whether IEPs are portrayed accurately in the book. They are portrayed as something that sucks.
The implication is that Paul has never had an IEP when he moves to Florida at the beginning of the book. (He's about thirteen or fourteen years old and has been visually impaired since he was five.) His mom mentions to his new principal that Paul is legally blind, and is told to fill out an IEP. Then Paul is given a guide at school, who he blows off saying "I can see fine," and is prevented from playing soccer because it would be bad for the insurance to have a legally blind kid on the team. Paul loves soccer and is really good at it, so he flips out and takes extreme action so that he can transfer to a different school and intentionally keep them from realizing he's disabled. The rest of the plot comes out of Paul's experiences playing soccer at at his new school where most of the students are poor and nonwhite (Paul is rich and white).
Throughout the book, the implication that Paul is impaired in any way is portrayed as laughable. In the narration, Paul keeps commenting that he hopes no authority figures from his old school see him and exclaim, "That kid's handicapped! He needs an IEP!" (Handicapped is the word the soccer coach used when explaining Paul couldn't be on the team; Paul never calls himself handicapped, disabled, blind, etc., but instead refers to "my glasses" as the thing that sets him apart.)
Paul's label of disability is used against him by his family as well as the school. It is obvious from the beginning of the book that Paul's brother has problems with violence and crime, but that their parents play favorites and ignore those problems. When Paul points out things that would reveal what's going on with his brother, his parents remind him that he can't see very well and probably misunderstood. I feel like this would be cool if Paul actually was impaired in any real way--I just read The Girl With the Dragon Tattoo, and I think Larssen does a fantastic job portraying Lisbeth as someone who is unfairly labeled and discriminated against due to her disability, without implying that her disability isn't real. But in Tangerine, disability is just an idea that you use to hurt someone, there's no real disability.
(I also feel like when you spend a lot of time saying "but I'm not really disabled! That's hilarious that you would say I'm disabled!" you start feeding the specter of those Really Disabled People who exist somewhere, who it would be so terrible/outlandish to be associated with.)
There are a few instances in the book that seem to imply a more positive identification with disability--or some kind of identification, anyway. Paul thinks of himself as a circus freak because his brother tells people that Paul became blind from looking at an eclipse straight on. (No prizes for guessing how Paul actually became blind.) Paul says that he doesn't mind being a racial minority at his new school because "my glasses" make him feel like a minority anyway--which is obviously problematic but does imply that disabled people are a minority group.
The most striking instance is when one of Paul's new friends is talking about his (the friend's) brother, Luis. Paul's friend talks about the knee injury Luis got as a kid, his ambitions, and the fact that he played soccer in middle and high school. When Paul asks what position Luis played, the friend replies, "He played goalie [Paul's favorite position], because he was handicapped."
Paul has a strong reaction and imagines that his friend might be making fun of him by using the word "handicapped," but realizes that he isn't and marvels that his friend neutrally used the word. Luis is a heroic character whom Paul admires and learns from, and I don't know exactly why Bloor decided to make him disabled and a goalie. The commonality between Luis and Paul is never discussed again.
I like reading books written for kids (although it was embarrassing when my 14-year-old camper said, "Oh yeah Tangerine, I just read that book for school") and I like the style of this book and think it has an interesting plot. But I'm sort of frustrated that Bloor brought in things like Paul's IEP and his parents undermining him because of his disability label, without making Paul actually be impaired. I feel like it could be a book that would humanize a disabled character and show how he is discriminated against, without being an "issue book" about ableism. But Bloor just makes it a book about a non-disabled kid who's inexplicably treated like he's disabled.
I just finished reading Tangerine by Edward Bloor, a young adult book that does the same thing with disability. The main character, Paul, is said to be "legally blind" but the implication is that this either hasn't been true since he was a kid, or that it doesn't really affect him that much. People react negatively to Paul's label of disability, and his glasses (which are apparently unusual-looking), but there are no instances in the whole book of Paul not being able to do something, or needing help, because of his vision. He describes things he sees which are quite far away (for example, birds flying and fields that he sees out the car window). His disability seems to exist in name only.
I've had this book since I was 14, because I bought it and never read it. I finally decided to take it to camp so it would stop crowding up my bookcase, and when I opened it to a random page I was surprised to see the word "IEP." It turns out that Paul's IEP is an important plot point--which is interesting, right? When I had an IEP I didn't know I had one, so I don't know whether IEPs are portrayed accurately in the book. They are portrayed as something that sucks.
The implication is that Paul has never had an IEP when he moves to Florida at the beginning of the book. (He's about thirteen or fourteen years old and has been visually impaired since he was five.) His mom mentions to his new principal that Paul is legally blind, and is told to fill out an IEP. Then Paul is given a guide at school, who he blows off saying "I can see fine," and is prevented from playing soccer because it would be bad for the insurance to have a legally blind kid on the team. Paul loves soccer and is really good at it, so he flips out and takes extreme action so that he can transfer to a different school and intentionally keep them from realizing he's disabled. The rest of the plot comes out of Paul's experiences playing soccer at at his new school where most of the students are poor and nonwhite (Paul is rich and white).
Throughout the book, the implication that Paul is impaired in any way is portrayed as laughable. In the narration, Paul keeps commenting that he hopes no authority figures from his old school see him and exclaim, "That kid's handicapped! He needs an IEP!" (Handicapped is the word the soccer coach used when explaining Paul couldn't be on the team; Paul never calls himself handicapped, disabled, blind, etc., but instead refers to "my glasses" as the thing that sets him apart.)
Paul's label of disability is used against him by his family as well as the school. It is obvious from the beginning of the book that Paul's brother has problems with violence and crime, but that their parents play favorites and ignore those problems. When Paul points out things that would reveal what's going on with his brother, his parents remind him that he can't see very well and probably misunderstood. I feel like this would be cool if Paul actually was impaired in any real way--I just read The Girl With the Dragon Tattoo, and I think Larssen does a fantastic job portraying Lisbeth as someone who is unfairly labeled and discriminated against due to her disability, without implying that her disability isn't real. But in Tangerine, disability is just an idea that you use to hurt someone, there's no real disability.
(I also feel like when you spend a lot of time saying "but I'm not really disabled! That's hilarious that you would say I'm disabled!" you start feeding the specter of those Really Disabled People who exist somewhere, who it would be so terrible/outlandish to be associated with.)
There are a few instances in the book that seem to imply a more positive identification with disability--or some kind of identification, anyway. Paul thinks of himself as a circus freak because his brother tells people that Paul became blind from looking at an eclipse straight on. (No prizes for guessing how Paul actually became blind.) Paul says that he doesn't mind being a racial minority at his new school because "my glasses" make him feel like a minority anyway--which is obviously problematic but does imply that disabled people are a minority group.
The most striking instance is when one of Paul's new friends is talking about his (the friend's) brother, Luis. Paul's friend talks about the knee injury Luis got as a kid, his ambitions, and the fact that he played soccer in middle and high school. When Paul asks what position Luis played, the friend replies, "He played goalie [Paul's favorite position], because he was handicapped."
Paul has a strong reaction and imagines that his friend might be making fun of him by using the word "handicapped," but realizes that he isn't and marvels that his friend neutrally used the word. Luis is a heroic character whom Paul admires and learns from, and I don't know exactly why Bloor decided to make him disabled and a goalie. The commonality between Luis and Paul is never discussed again.
I like reading books written for kids (although it was embarrassing when my 14-year-old camper said, "Oh yeah Tangerine, I just read that book for school") and I like the style of this book and think it has an interesting plot. But I'm sort of frustrated that Bloor brought in things like Paul's IEP and his parents undermining him because of his disability label, without making Paul actually be impaired. I feel like it could be a book that would humanize a disabled character and show how he is discriminated against, without being an "issue book" about ableism. But Bloor just makes it a book about a non-disabled kid who's inexplicably treated like he's disabled.
Labels:
blind,
book,
disability identity,
education,
middle school
16 April, 2010
briefly, a mystery
because I don't want to bother my parents, because I think they think I bother them a lot about this stuff, and my dad always says he can't find my records from the psychologist I went to when I was in second and third grade, who thought I had experienced some kind of traumatic abuse. At the same time, if someone thought I experienced traumatic abuse, I kind of want to know about it.
The other thing, though, the really weird thing, is the PDD-NOS diagnosis. It was kind of nice to find out about it since I anyway don't think of myself as having "Asperger's" and now I have an excuse for not wanting to describe my disability that way, and just saying ASD which feels truer and simpler. It's nice--but also, I kind of feel like I'm lying, because I've never seen the diagnosis written down, and I found out about it when I was twenty, nine or ten years after the fact.
Yesterday I told someone that I thought I had been sent to a resource room to practice eye contact. But then I didn't even know if I was telling the truth. When I think about it, I know that I went to resource rooms throughout middle school, but I remember very little about what I did. Maybe I just don't remember much about being that age--but although there's stuff I've probably blocked out, I paid attention to stuff that seemed relevant. I think the reason I don't remember about the resource rooms is simply that I didn't know I had a disability, so I didn't think about my life that way, so I didn't exactly realize that I was doing disability things.
I was interested in disabilities. I think I would have been aware if I'd known that's what it was about.
For the years before my AS and NVLD diagnoses (I was diagnosed with both at the same time, which is kind of like diagnosing someone as both homosexual and gay) I was conscious that my parents were worried about me and thought something was wrong with me. They read a lot of books and got me a lot of extra help. This bothered me and I remember the moment in seventh grade when I really sorted it out and realized how incredibly lonely and guilty I felt, and realized that I couldn't be as bad as the situation made me feel I was. My intent isn't to criticize my parents, they were doing what they thought was necessary--but my intent is to criticize my parents, because I can't believe that I was already diagnosed as ASD and they didn't just tell me.
I don't even understand why I got diagnosed again. I'm sort of starting to put together that when my mom would tell people I had PDD-NOS, they'd get really upset, or they'd just tell my mom it couldn't possibly be true because I didn't hit my head on walls. So--maybe--I'm constructing this--my parents wanted me to know I had a disability, because it would influence my actions in some way, or help me understand things, or something--but they didn't want to tell me I had something that was looked at as so dire. And then they found out about this thing called Asperger's which was kind of the same, but new and not as bad and easier to talk about? So they started trying to introduce me to it, and then they got someone to diagnose me with it? Not that they shopped around or something, but that they asked someone "Does Amanda have Asperger's or not?" like there were two options. That's how I think of it.
It's not exactly important. At the same time, I desperately want all my records, and I want to ask my parents a bunch of questions, but I always seem to ask at the wrong time, and I'm probably mean.
The other thing, though, the really weird thing, is the PDD-NOS diagnosis. It was kind of nice to find out about it since I anyway don't think of myself as having "Asperger's" and now I have an excuse for not wanting to describe my disability that way, and just saying ASD which feels truer and simpler. It's nice--but also, I kind of feel like I'm lying, because I've never seen the diagnosis written down, and I found out about it when I was twenty, nine or ten years after the fact.
Yesterday I told someone that I thought I had been sent to a resource room to practice eye contact. But then I didn't even know if I was telling the truth. When I think about it, I know that I went to resource rooms throughout middle school, but I remember very little about what I did. Maybe I just don't remember much about being that age--but although there's stuff I've probably blocked out, I paid attention to stuff that seemed relevant. I think the reason I don't remember about the resource rooms is simply that I didn't know I had a disability, so I didn't think about my life that way, so I didn't exactly realize that I was doing disability things.
I was interested in disabilities. I think I would have been aware if I'd known that's what it was about.
For the years before my AS and NVLD diagnoses (I was diagnosed with both at the same time, which is kind of like diagnosing someone as both homosexual and gay) I was conscious that my parents were worried about me and thought something was wrong with me. They read a lot of books and got me a lot of extra help. This bothered me and I remember the moment in seventh grade when I really sorted it out and realized how incredibly lonely and guilty I felt, and realized that I couldn't be as bad as the situation made me feel I was. My intent isn't to criticize my parents, they were doing what they thought was necessary--but my intent is to criticize my parents, because I can't believe that I was already diagnosed as ASD and they didn't just tell me.
I don't even understand why I got diagnosed again. I'm sort of starting to put together that when my mom would tell people I had PDD-NOS, they'd get really upset, or they'd just tell my mom it couldn't possibly be true because I didn't hit my head on walls. So--maybe--I'm constructing this--my parents wanted me to know I had a disability, because it would influence my actions in some way, or help me understand things, or something--but they didn't want to tell me I had something that was looked at as so dire. And then they found out about this thing called Asperger's which was kind of the same, but new and not as bad and easier to talk about? So they started trying to introduce me to it, and then they got someone to diagnose me with it? Not that they shopped around or something, but that they asked someone "Does Amanda have Asperger's or not?" like there were two options. That's how I think of it.
It's not exactly important. At the same time, I desperately want all my records, and I want to ask my parents a bunch of questions, but I always seem to ask at the wrong time, and I'm probably mean.
Labels:
asd,
disability identity,
elementary school,
middle school
08 April, 2010
Just a splinter
Okay, I got kind of pissed in class today because we were talking about bullying and people started talking about their friends and how when their friend's ex-boyfriend or ex-girlfriend comes into the room, they start pointing at them. I don't really understand the point of talking about bullying if you make the definition of bullying so broad that it's about everyone.
I raised my hand and said something like this (I didn't sleep last night, okay? I'm not doing a good job taking stuff lying down):
When I was a kid I had very dramatic physical and facial reactions to things. So, other kids would come up to me with scissors and make like they were going to stab me in the eyes. They would also goose me, lunge at me, etc. There were also verbal fake-outs where people would say things over and over that we both knew weren't true, like that they wanted to go on a date with me.
I'm not saying this ruined my life or anything, but it has had a huge effect on my ability to have physical emotional reactions to things. It's very hard for me to let myself smile or flinch or anything at the drop of a hat, especially when I'm standing up. For example when I see people I like, it's hard for me to let myself look happy. My body wants to look happy, but it stops itself. It can't just let itself do whatever it feels like. I feel overwhelmed and I make faces or just go stiff and stuff instead.
After I had only been away from that environment for a year, I had this boyfriend who I communicated with online. I had known him in real life before we started being in contact online, but once we started dating I would get too panicked about seeing him in real life or even talking to him on the phone. It was just too much. I couldn't let myself get overwhelmed by being around him. One time he made the mistake of telling me that he loved me, and I got so upset I went on this dissociation/shutdown experience for most of a day.
This is obviously much more than what I said in class. And I'm not trying to make a point. I mean, I am, but do you see what I mean without me coming out with a thesis statement? People are frequently shitty to each other but I would say that people were shitty to me in a way that led to very pervasive problems that still affect me almost ten years later. When I have little DSM flamewars or whatever, I don't think that's the same thing. I don't think anything will ever be the same thing.
I raised my hand and said something like this (I didn't sleep last night, okay? I'm not doing a good job taking stuff lying down):
When I was a kid I had very dramatic physical and facial reactions to things. So, other kids would come up to me with scissors and make like they were going to stab me in the eyes. They would also goose me, lunge at me, etc. There were also verbal fake-outs where people would say things over and over that we both knew weren't true, like that they wanted to go on a date with me.
I'm not saying this ruined my life or anything, but it has had a huge effect on my ability to have physical emotional reactions to things. It's very hard for me to let myself smile or flinch or anything at the drop of a hat, especially when I'm standing up. For example when I see people I like, it's hard for me to let myself look happy. My body wants to look happy, but it stops itself. It can't just let itself do whatever it feels like. I feel overwhelmed and I make faces or just go stiff and stuff instead.
After I had only been away from that environment for a year, I had this boyfriend who I communicated with online. I had known him in real life before we started being in contact online, but once we started dating I would get too panicked about seeing him in real life or even talking to him on the phone. It was just too much. I couldn't let myself get overwhelmed by being around him. One time he made the mistake of telling me that he loved me, and I got so upset I went on this dissociation/shutdown experience for most of a day.
This is obviously much more than what I said in class. And I'm not trying to make a point. I mean, I am, but do you see what I mean without me coming out with a thesis statement? People are frequently shitty to each other but I would say that people were shitty to me in a way that led to very pervasive problems that still affect me almost ten years later. When I have little DSM flamewars or whatever, I don't think that's the same thing. I don't think anything will ever be the same thing.
16 March, 2010
"this I used to believe"
When I was thirteen I went to school in a gauntlet. It took a while for me to understand what this meant. One went to middle school. One was intrigued by the new building and stopped to watch boys knocking each other to the ground in the middle of the hallways. One felt crowded because one didn’t like noise. One tried to scrape out a place for oneself, in class, by saying weird things and chasing Richard around, both hitting each other with math books (whatever math was then).
Back then, in sixth grade, one was still kind of shut away from the world in a particular wing, although one ventured out, for gym, for art. On sunny days, all the kids were let outside to kick balls and make out under the trees, except one who was writing poems and listening to some older teachers talk about a girl in seventh grade who made a hit list and got suspended, one teacher saying, “She’s a nice girl. It’s sad. They just tease her so much.” And one knew, sort of--one had always known one was going to be the kind of girl who makes a hit list. It was just a matter of time.
If I expected words as withering as the ones in movies, then I was watching the wrong movies, and if I expected violence, then I forgot I was a girl. What developed around me as I progressed, making the wrong moves or just moving wrong, was an explosion of words without meaning, and endless, endless motions never carried through.
By the latter I mean goosing, jumping at me, making as if to grab my crotch or my thigh, and laughing when I flinched. Or coming at me, wielding a pair of scissors and letting them get within a few inches of my eyeballs before turning them off course. This is what I mean by the gauntlet, a tremendous difficulty, a brittleness in one’s chest as one is getting one’s books together to leave for the next class. And one is older now, and not sequestered away; one walks out the door, and one plunges into the gauntlet. One is tested on one’s reflexes and one always fails.
There are verbal reflexes, and that’s what I mean by the former, which is boys asking me on a date, even though I’m known and know myself to be not the kind of girl people ask on a date. Pale and flabby and ageless, I think, trying to fend off Taylor’s oh-so-ironic proposal: “Please, please, go out with me, come on, Amanda, just one time,” and finally, “If you go out with me, I’ll give you a dollar. You can buy a dildo.”
But that is not what I mean, and neither do I mean being accused of jerking off during the school play because I was rocking back and forth in my seat. Because the sexual stuff was always the cleverest stuff, and what I’m really talking about, besides people hitting my backpack so I slightly fell forward, is just a collection of words that are neutral and even cute--“bookworm,” “stairwell girl,” and most permanently my own last name called out to the extent that when I heard it said, at the doctor’s office or on our answering machine, I cringed. I’m still hoping I can marry out of it because it always feels like an itchy second skin, an epithet that for some reason is typed out on my birth certificate and my student ID.
But never mind. Christine was minor league, back in sixth grade--all those people who write books about how mean girls are to each other have never experienced the gauntlet, which is almost always populated by boys, the only people vicious enough, most of the time, to lean out and snarl into your face about how ugly you are when you are twitchily picking your way from art to math. Christine was just part of the pre-gauntlet situation, which maybe explains why in seventh grade, during the development of the true gauntlet, I distracted myself by making a new screen name and anonymously messaging Christine, telling her I was going to come to her house and kill her. I was with Megan, a friend from fifth grade who now went to Catholic school and was CCD enemies with Christine from way back. Megan and I were giggling. I don’t think we thought of what was going on as evil, or thought that Christine could be scared, although in retrospect we should have been able to see that she was getting increasingly terrified.
I was always taught never to swear when I was a kid, and I believed in it so hard that sometimes I would swear accidentally, compulsively, when I was alone, and then break down in tears. I don’t know why you would tell a kid like me something in such a serious tone of voice, but I guess my parents had their reasons.
I generally believe what I see. It’s not that I don’t believe in other people’s humanity, but that I had to meet it first. And the first time I said fuck you to one of the kids who was goosing me, I thought the world was going to explode, but he just laughed and imitated me in a high, lilting voice. This was not a meeting. And it also wasn’t a meeting when Christine said pleasantly, after some sort of encounter in which I had been asked how much I weighed and why my hair looked the way it did, “Come on, Amanda. You pretend you like being weird, but everyone knows that you wish you were pretty and had a boyfriend.” Which I did. She was joking, kind of, we were kind of friends--but as I said my verbal reflexes were poor, and as those books point out, as if they’ve thought of it for the first time, friends can treat each other badly.
Anyway, her mom called the police, and I was shocked when I found out that Christine had a mother and that she could cry. That’s when I started believing in her insides again.
For the rest of school, I’m not embarrassed to say that I sometimes imagined holding down the boys of the gauntlet with guns to their heads or cutting off pieces of their ears. I wanted to believe in them. I wanted them to wear it on the surface, like I do--to be reduced to squirming, to begging, to flinching. To swear.
Back then, in sixth grade, one was still kind of shut away from the world in a particular wing, although one ventured out, for gym, for art. On sunny days, all the kids were let outside to kick balls and make out under the trees, except one who was writing poems and listening to some older teachers talk about a girl in seventh grade who made a hit list and got suspended, one teacher saying, “She’s a nice girl. It’s sad. They just tease her so much.” And one knew, sort of--one had always known one was going to be the kind of girl who makes a hit list. It was just a matter of time.
If I expected words as withering as the ones in movies, then I was watching the wrong movies, and if I expected violence, then I forgot I was a girl. What developed around me as I progressed, making the wrong moves or just moving wrong, was an explosion of words without meaning, and endless, endless motions never carried through.
By the latter I mean goosing, jumping at me, making as if to grab my crotch or my thigh, and laughing when I flinched. Or coming at me, wielding a pair of scissors and letting them get within a few inches of my eyeballs before turning them off course. This is what I mean by the gauntlet, a tremendous difficulty, a brittleness in one’s chest as one is getting one’s books together to leave for the next class. And one is older now, and not sequestered away; one walks out the door, and one plunges into the gauntlet. One is tested on one’s reflexes and one always fails.
There are verbal reflexes, and that’s what I mean by the former, which is boys asking me on a date, even though I’m known and know myself to be not the kind of girl people ask on a date. Pale and flabby and ageless, I think, trying to fend off Taylor’s oh-so-ironic proposal: “Please, please, go out with me, come on, Amanda, just one time,” and finally, “If you go out with me, I’ll give you a dollar. You can buy a dildo.”
But that is not what I mean, and neither do I mean being accused of jerking off during the school play because I was rocking back and forth in my seat. Because the sexual stuff was always the cleverest stuff, and what I’m really talking about, besides people hitting my backpack so I slightly fell forward, is just a collection of words that are neutral and even cute--“bookworm,” “stairwell girl,” and most permanently my own last name called out to the extent that when I heard it said, at the doctor’s office or on our answering machine, I cringed. I’m still hoping I can marry out of it because it always feels like an itchy second skin, an epithet that for some reason is typed out on my birth certificate and my student ID.
But never mind. Christine was minor league, back in sixth grade--all those people who write books about how mean girls are to each other have never experienced the gauntlet, which is almost always populated by boys, the only people vicious enough, most of the time, to lean out and snarl into your face about how ugly you are when you are twitchily picking your way from art to math. Christine was just part of the pre-gauntlet situation, which maybe explains why in seventh grade, during the development of the true gauntlet, I distracted myself by making a new screen name and anonymously messaging Christine, telling her I was going to come to her house and kill her. I was with Megan, a friend from fifth grade who now went to Catholic school and was CCD enemies with Christine from way back. Megan and I were giggling. I don’t think we thought of what was going on as evil, or thought that Christine could be scared, although in retrospect we should have been able to see that she was getting increasingly terrified.
I was always taught never to swear when I was a kid, and I believed in it so hard that sometimes I would swear accidentally, compulsively, when I was alone, and then break down in tears. I don’t know why you would tell a kid like me something in such a serious tone of voice, but I guess my parents had their reasons.
I generally believe what I see. It’s not that I don’t believe in other people’s humanity, but that I had to meet it first. And the first time I said fuck you to one of the kids who was goosing me, I thought the world was going to explode, but he just laughed and imitated me in a high, lilting voice. This was not a meeting. And it also wasn’t a meeting when Christine said pleasantly, after some sort of encounter in which I had been asked how much I weighed and why my hair looked the way it did, “Come on, Amanda. You pretend you like being weird, but everyone knows that you wish you were pretty and had a boyfriend.” Which I did. She was joking, kind of, we were kind of friends--but as I said my verbal reflexes were poor, and as those books point out, as if they’ve thought of it for the first time, friends can treat each other badly.
Anyway, her mom called the police, and I was shocked when I found out that Christine had a mother and that she could cry. That’s when I started believing in her insides again.
For the rest of school, I’m not embarrassed to say that I sometimes imagined holding down the boys of the gauntlet with guns to their heads or cutting off pieces of their ears. I wanted to believe in them. I wanted them to wear it on the surface, like I do--to be reduced to squirming, to begging, to flinching. To swear.
Labels:
asd,
bullying,
for school,
middle school,
violence
12 January, 2010
The most boring thing ever
A Feministing thread about this video was linked by Ouyang Dan on FWD and it (the thread and the video) is legitimately the most boring thing I've ever seen in my life. Everyone on the Feministing thread is shitting themselves about how great it is for 14-year-old girls to be expressing these sentiments which is like--really?
1. No one who's 14 still plays with Barbies anyway, so I don't see how it's some amazing rebellion for a 14-year-old to make fun of Barbie. It reminds me of how when I was eight my friend and I used to watch Blue's Clues (which is aimed at 3-5-year-olds) and make fun of how Steve didn't know anything.
2. I would have killed to look like these girls when I was 14. Actually I still would. I guess I shouldn't make assumptions about how other people feel about their appearance, but it's just hard for me to imagine that this song comes out of a struggle, that those girls have felt really bad about themselves and now they're writing this song to fight those feelings. These very pretty, thin girls are writing a song about how you don't have to be pretty and thin! Yeah! Awesome!
A good example of something not-boring is Sleater-Kinney; specifically, Corin Tucker. Corin Tucker is different from these girls because she's actually talented, but also, she isn't incredibly skinny or conventionally pretty. I've seen her be called fat. I'm not saying that you should like bands because they're less conventionally pretty, but just that being part of Sleater-Kinney fandom actually made me feel less anxious about the way I look, whereas the Care Bears on Fire video says the right words, but doesn't make you feel anything different.
3. I have to admit to not feeling a ton of pity when women say things like, "I have a super high metabolism, and people always tell me I'm too skinny and should eat something." It sort of reminds me of "It Ain't Easy Being White" by Gob Bluth:
I know that I'm not seen as fat--I'm about a size six or eight--but I know a lot of girls who are a lot thinner than I am, and I've never felt good about my weight. If I somehow get one of those metabolisms and become a size two and everyone keeps telling me to eat something, I'll be incredibly delighted. Maybe I'm displaying insufficient empathy, but seriously, I just can't imagine that these magic metabolism people feel as bad about being skinny as they claim. How can they?
But that said, that doesn't mean that "eat a sandwich" is actually a feminist thing to say. First of all, some women are not thin because of their metabolism, they're thin because of an eating disorder, or another health reason; criticizing them for their thinness is hurtful. Second of all, when women are thin because of their metabolism, it's still kind of a stupid, messed-up thing to say, even though they're the privileged group. And finally, the bogeyman (implied when women bend over backwards to insist that they're thin because of their metabolism)--some women are thin because of a really strict diet. But why insult those women, either? To reference yet another dead TV show, this reminds me of a scene from Buffy the Vampire Slayer, in which Veruca and Oz have the following exchange:
Oz: Big lunch?
Veruca: I like to eat. I hate chicks who are like, "does it have dressing on it?"
To give some background, Veruca is a villain, though she's a small-scale, human-relations villain, not a Big Bad like Angelus or the Mayor. She is basically in the show to try to seduce Oz away from Willow. Veruca has various things in common with Oz that make Willow feel left out, and in the scene I'm quoting, Willow soon approaches Veruca and Oz and is made to feel uncomfortable because they are talking about music (they're both musicians and Willow is not). Veruca seems to relish making Willow feel uncomfortable and left out.
Feeling stupid and uninformed about music (IIRC, Veruca and Oz are talking about some very stereotypically masculine thing, like gear) is an archetypal feeling for a woman surrounded by men. It seems like Veruca is setting herself up as "one of the guys;" a girl who understands stuff that most girls don't understand. Those stupid girls, feeling left out of music! How could they possibly feel that way? Certainly not because guys don't make them feel welcome, or anything like that. And it's the same with the food. It's Veruca vs. those stupid girls who are obsessed with dressing and don't appreciate hamburgers and stuff, like guys do! Of course Oz would never find a woman unattractive because she was heavy! Of course Oz would never insult or judge a woman for being heavy! No man would do anything like that. This is just some stupid thing that women made up, because they're stupid, and they like to freak out about things that aren't real.
I'm not saying that Joss Whedon is good on weight issues, because that would be the most hilarious mischaracterization of the century, but I think that particular scene is really striking and accurate. A woman refusing to see the ways women are oppressed, so that she (while still being quite conventionally attractive, if slightly less thin than Alyson Hannigan) can be The Exception, the woman who doesn't worry about dumb stuff.
I sound like I'm going off on a tangent, but this is how I feel about that video. I was told in elementary school and in Girl Scouts that Barbie would fall over if she was a live woman. Everyone knows that. "Barbie Eat a Sandwich" is the most wholesome, socially acceptable song you could possibly write about body image. What if Care Bears on Fire wrote a song about a girl's mother criticizing her weight all the time? Or her boyfriend making snarky comments because she eats a cheeseburger? Or a girl who was actually "fat," not a size four or whatever they are, going to the doctor and having her actual health issues be ignored because the doctor is guilting her about her weight? That song wouldn't be so wholesome and socially acceptable to everyone because it would actually be calling out people who discriminate against women for their size and eating habits, instead of criticizing a woman for being too thin and not eating enough (who, okay, okay, as everyone on Feministing keeps saying, isn't a real person--but that just makes the song even more cowardly and makes me even more annoyed that people think it's so brave and great or whatever).
So, to finish up, this song is just incredibly boring and doesn't say anything cool at all, and now I will post my favorite Sleater-Kinney song:
Basically I think this song is really good, and not-boring, because it portrays the narrator's issues with food in a complex way and shows how they come from the oppression of women. Instead of a woman blaming another woman for being so stupid as to care about her weight and what she eats, we have a woman angrily and sadly expressing how she feels and raging against the forces that have made her feel that way.
(I hope it doesn't come off like I think all eating disorders are related to sexism; I know that's not the case.)
04 December, 2009
Stephen King
In seventh grade my science teacher, whose name was Mr. Thompson, would sometimes try to corner me and advise me in the nicest way possible that I shouldn't make a spectacle of myself because it would just make things worse. I'm too shy to give examples of what I used to do, but I'm perfectly happy to give examples about someone else, so I will tell you that there was a small boy with large ears named Evan who was very good at doing an impression of a monkey. When anyone asked him, Evan would bound around the classroom, swinging his arms and making grunting noises. Not surprisingly, everyone's complete lack of respect for him would occasionally result in Evan exploding into tears and rage. Then most people would laugh. It's really easy to look at this kind of situation and say that Evan was stupid for pretending to be a monkey, but it's harder to figure out this kind of thing from the inside, and sometimes it takes a while to figure out what kind of attention you're getting, and once you do figure it out, it's too late to try to get any other kind of attention. Well, that was my situation and Evan's, and we would occasionally be very nasty to each other in art class in the hopes of improving our status, but guess what, it never improved.
Anyway, poor kind Mr. Thompson would gently try to inform me about my bad decision making, and he would try to advise me about which kids were "nice friends," even though none of them actually were. And one day, while I was scribbling away at some Harry Potter fanfiction or pantoums, Mr. Thompson popped up and informed me, "Amanda! Did you know that when Stephen King was in middle school, he was unpopular?"
Anyway, poor kind Mr. Thompson would gently try to inform me about my bad decision making, and he would try to advise me about which kids were "nice friends," even though none of them actually were. And one day, while I was scribbling away at some Harry Potter fanfiction or pantoums, Mr. Thompson popped up and informed me, "Amanda! Did you know that when Stephen King was in middle school, he was unpopular?"
25 November, 2009
The coolest/saddest thing ever
this morning I was talking to my friend Ralph when I left to get a soda. When I returned to my computer Ralph had gone to bed (he lives in California). Before signing off, he'd written:
so two asperger things
8:54 AM 1. a guy in my program has it and everytime I talk to him I remember that and go "FUCK! I WANT TO HANG OUT WITH AMANDA"
2. DId you hear about the kid who ran away from home and spent a week living on the subway in NYC?
I had not heard! But I have now. The kid is named Francisco Hernandez Jr. and he lives in Brooklyn. He's 13 and was diagnosed with Asperger's three years ago. When he's under pressure, Francisco (in the words of the doctor who diagnosed him) "freezes in confusion because he does not know what to do or say." On October 15, he was yelled at for not completing an assignment, and the school called his mom. When Francisco called his mom to say he was coming home, his mom told him that she wanted to have a serious talk with him. He was so anxious that he got on the subway and continued to ride the subway for 11 days, using his bag as a pillow and using the ten dollars he had on him to buy junk food at subway stations.
His parents feel that the police didn't work hard enough to find Francisco because they are immigrants and didn't "understand how to manage the situation [or] speak English very well." A detective told his mom that Francisco was probably staying with a friend--but he doesn't have any friends. Francisco says he "stopped feeling anything" while he was riding the subway. When asked what he thinks about the fact that no one noticed him or talked to him for eleven days, he said, "Nobody really cares about the world and about people.”
This story is both the saddest and the coolest thing ever. Like many ASD people, I love trains, and living on a subway train is the kind of thing I made up stories about when I was a kid, writing up elaborate plans of how I'd survive. Francisco has accomplished a feat of E. L. Konigsburg proportions. There's also something iconic about the unselfconsciously gloomy statements he made to the New York Times--"nobody really cares about the world and about people"? I'm pretty sure he could become the next Edward Scissorhands or Jeff Mangum.
But while it's nice to imagine Francisco bragging about his adventure to his friends when he's 19 or 20, the time when this will be just an awesome story is a long way away. The time when Francisco will have friends is, probably, a long way away, and I bet it seems so far away that he doesn't believe it exists. He said he was planning on staying on the subway forever; he lost all sense of time. I think people lose their sense of time when they think that things are so bad they'll never change.
The words "eighth grade" are the two most painful words in the English language, at least for me. But I still believed in a better future, sort of; not with all my heart, but enough that I didn't try to disappear from life altogether. I held on. It breaks my heart that Francisco didn't believe there was anything to hold on for, that the world was just too scary for him to stay.
I want to write him a letter. I want this period of his life to be over. I want him to go the school where his doctors want him to go, where he can be with other kids who have disabilities, instead of staying at the school that claims he's doing fine but terrified him into disappearing for two weeks. I just want him to be older, playing video games with his friends and saying, "hey, did I ever tell you about the time I ran away and lived on the subway?"
so two asperger things
8:54 AM 1. a guy in my program has it and everytime I talk to him I remember that and go "FUCK! I WANT TO HANG OUT WITH AMANDA"
2. DId you hear about the kid who ran away from home and spent a week living on the subway in NYC?
I had not heard! But I have now. The kid is named Francisco Hernandez Jr. and he lives in Brooklyn. He's 13 and was diagnosed with Asperger's three years ago. When he's under pressure, Francisco (in the words of the doctor who diagnosed him) "freezes in confusion because he does not know what to do or say." On October 15, he was yelled at for not completing an assignment, and the school called his mom. When Francisco called his mom to say he was coming home, his mom told him that she wanted to have a serious talk with him. He was so anxious that he got on the subway and continued to ride the subway for 11 days, using his bag as a pillow and using the ten dollars he had on him to buy junk food at subway stations.
His parents feel that the police didn't work hard enough to find Francisco because they are immigrants and didn't "understand how to manage the situation [or] speak English very well." A detective told his mom that Francisco was probably staying with a friend--but he doesn't have any friends. Francisco says he "stopped feeling anything" while he was riding the subway. When asked what he thinks about the fact that no one noticed him or talked to him for eleven days, he said, "Nobody really cares about the world and about people.”
This story is both the saddest and the coolest thing ever. Like many ASD people, I love trains, and living on a subway train is the kind of thing I made up stories about when I was a kid, writing up elaborate plans of how I'd survive. Francisco has accomplished a feat of E. L. Konigsburg proportions. There's also something iconic about the unselfconsciously gloomy statements he made to the New York Times--"nobody really cares about the world and about people"? I'm pretty sure he could become the next Edward Scissorhands or Jeff Mangum.
But while it's nice to imagine Francisco bragging about his adventure to his friends when he's 19 or 20, the time when this will be just an awesome story is a long way away. The time when Francisco will have friends is, probably, a long way away, and I bet it seems so far away that he doesn't believe it exists. He said he was planning on staying on the subway forever; he lost all sense of time. I think people lose their sense of time when they think that things are so bad they'll never change.
The words "eighth grade" are the two most painful words in the English language, at least for me. But I still believed in a better future, sort of; not with all my heart, but enough that I didn't try to disappear from life altogether. I held on. It breaks my heart that Francisco didn't believe there was anything to hold on for, that the world was just too scary for him to stay.
I want to write him a letter. I want this period of his life to be over. I want him to go the school where his doctors want him to go, where he can be with other kids who have disabilities, instead of staying at the school that claims he's doing fine but terrified him into disappearing for two weeks. I just want him to be older, playing video games with his friends and saying, "hey, did I ever tell you about the time I ran away and lived on the subway?"
Labels:
asd,
francisco hernandez jr.,
middle school,
pain,
police,
race
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