about individuals

I started to write something about this two years ago but I didn't really know where I was going with it, and still don't, but (like lots of people) I find it really gross when professionals and other "allies" think that using person-first language is more important than actually not being ableist. Especially when they boss people who are actually less ableist than they are, or are actually disabled, because the person didn't use PFL.

However, something that I think is even weirder than the prescriptivism on PFL is the word "individuals." You basically only see the word individuals used about people who have committed a crime or are disabled, and a lot of the kind of people who overprioritize person-first language are the kind of people who use the word individuals. It's primarily used by professionals when they are talking about disabled people, either in specific or in general. Someone will talk about the "individual with autism" they are working with, or also you see this in a more broad way used to describe a big group of people--like a service provider might have on their website, "we serve individuals with profound disabilities."

I can't exactly put my finger on what bothers me about the word individual, but I think it's really just the fact that it only seems to be used about disabled people. I assume the decision to use a different word instead of "people" is a reaction to something, but what is it a reaction to? It sounds so alienating and medicalized--what's wrong with saying "we serve people with profound disabilities" or "I've been working with this man with autism?"

Can someone explain this to me?

Hi everyone. My name is autism and some mood/anxiety stuff but a lot of people just call me autism. I’m 22 and about to graduate from college. There’s not really much to say about me--I like Skins, I move very quickly, I’m not a great disability to go to church with. But overall I’m just like any other disability and I want the same things.

Well, except that I happen to have a person. My person is called an Amanda Forest Vivian Spectrum Disorder, or AFVSD for short. I was diagnosed with AFVSD when I was nine and she has caused me to have problems with social communication and being gayyy. But seriously guys, that’s between her and me. My AFVSD is none of your business--I’m first and foremost autism, and I want to be treated that way.

The most difficult disabilities for me to be friends with are the ones who don’t respect me as a disability and just treat me like a PERSON. They don’t even see me, just a stereotype of what a person is. They’re so busy looking at my Amanda Forest Vivian Spectrum Disorder that they don’t realize when something is too loud for me, or when I’m really not feeling good and might end up werewolf-attacking AFVSD. Then they act all surprised, but if they just treated me like autism instead of "Amanda," I would be able to achieve more of the things that I want.

No matter how different I may seem with this giant lesbian tragedy attached to my face, please remember that I’m a disability first and a person second--so please use disability-first language to show that you respect me as a whole disability and aren’t obsessed with my person. It’s the LAW.

Yours in disabilitycapades,

autism and some mood/anxiety stuff, ES-FUCKING-SQUIRE

P.S. My AFVSD continues to prefer person-first language and isn't saying otherwise, but neither of us can handle nothings-with-persons thinking they have a right to actually criticize and correct disabilities for not using PFL, especially when they complete ignore actually important things that disabilities are saying about anti-ableism in favor of bitching about a LANGUAGE USAGE THAT SOME OTHER NWAP TOLD THEM TO USE. FOR FUCK'S SAKE.

apologies & far future promises

Gosh I don't post very much do I. Sorry about that. I'm not quitting. I do post on tumblr a lot, and fairly often converse about disability stuff on there. But when I'm at school it's kind of like there are the things that I run away to when I'm stressed, and it used to be this blog but now it's more often tumblr. But you know after I graduate and all I'll be able to focus and write here more. I have lots of ideas, unfortunately, as usual, including:

1. disability and gender expression, especially painful gender expression. If you have sensory & cognitive problems, being feminine or masculine can hurt, maybe being feminine especially. Among liberal people, I feel like it's often seen as a weak/oppressed behavior for someone to care so much what they look like that they would suffer for it, but given the sort of things that cause me to suffer or be overtaxed, not suffering would kind of mean not expressing myself through presentation at all. So that's interesting.

2. this post I already wrote in a notebook months ago where I talked about 3 different ways of portraying disability in pop culture: medical model (dour fiction where authority figures are always right), fake social model (funny and interesting fiction where authority figures are wrong, but the "disabled" character isn't really disabled), and actual social model. And I discuss the movie It's Kind of a Funny Story which was an admirable attempt at making a mainstream movie in social model, but was annoyingly written off by reviewers when they couldn't categorize it as medical or fake social model. So this one I just have to type up.

3. really long post which I have written a lot of, where I attempt to show that both person-first language and disability-first language are offensive, so we basically can't win and should stop caring.

4. possibly a post about The United States of Tara? As someone who doesn't have DID or have any friends with DID, my understanding is that the show portrays DID quite unrealistically so I probably should reject it. But I can't just see it as a guilty pleasure that I stick with because I've been watching it for years--there's something about the show's portrayal of disability that is really down-to-earth.

my crush on NOAH's person-first language page

I'm writing a very long post about person-first language and the fact that, although I prefer it, I think it's pretty annoying when people (usually non-disabled people) go around demanding that other people use it as though it's some kind of immediate key to respecting people with disabilities. In my opinion, all the arguments people use to try to prove that person-first language is inherently more accurate and respectful just end up making them sound like assholes. If I am really a "person first and a disability second," what does that mean? Does that mean people are supposed to be looking at a version of me where all the disabled parts of me have been scooped out and are floating along somewhere behind me? How are people supposed to relate to me when I have huge chunks missing? What kind of pressure does this put on me to avoid showing the parts of me that somehow aren't supposed to be part of my "personhood," and are supposed to be things I can detach?

I totally love person-first language and use it all the time while NOT feeling that it in any way should be taken literally when interacting with disabled people. This is why I have such immense love for the What Do You Call Me? page on the National Organization for Albinism and Hypopigmentation website. While it has a few instances of "person first and albinism second," the bulk of the page is devoted to talking about the pop culture image of an "albino," the way the word may be used to bully people, and, most importantly, what actual people with albinism feel about the word. Not surprisingly, opinions are mixed--some people see it as neutral, some people "reclaim" it, and some people feel uncomfortable or hurt when it is applied to them. After some discussion, the page arrives at this sort-of-conclusion:

To most in the albinism community, the term “person with albinism” will always be a kinder, gentler, less shocking term. Regardless of the context, the word “albino” can sometimes be an ugly, jolting word to many, especially when heard unexpectedly.

So, basically, it sounds better and doesn't call up a bunch of stereotypes. THANK YOU NOAH. It isn't necessary to imply that disability is some gross thing that has to be ignored, just to make the point that you shouldn't run around calling people a word that has a lot of stigma because it might make them feel bad.

For me, person-first language is about how things sound and feelings and implications; it's not right in any objective way, because that would be ridiculous.