Showing posts with label iacc. Show all posts
Showing posts with label iacc. Show all posts
16 May, 2010
01 May, 2010
Accidental Happiness Day
First I just want to tell you guys the very best Google search that has led people to this blog:
"can an autistic person seem smart and be an asshole"
Hopefully their question is now answered. Also I wanted to apologize because it's Blog Against Disablism Day and I figured I'd get angry about something and be able to write about it, but today I woke up feeling incredibly happy. I think my uncomfortable fallacy post from a few weeks ago is a good post about a particular kind of ableism. Amanda Baggs's BADD post If only, oh if only is a really good post about feeeeeelings, which I'm sure is the subject I would have ended up writing about if I had been in the mood.
But: why I'm incredibly happy. Yesterday I watched the live webcast of the Interagency Autism Coordinating Committee. As it says in my sidebar, any discussion of policy goes completely over my head so I'm not going to try to talk about the IACC meeting in an intelligent way. You should read the transcript or watch the video when they go up on the IACC website.
I was basically watching it because Ari is on it now and I was interested to see how he did. And of course I was a bit scared for him because I don't feel safe about that kind of people. About the time I started watching, a guy was making a big speech that I wish I could remember more accurately, but it contained basically every awful thing you could say in a really short period of time. "If you're a parent, or just any person, or an individual," he said, and I got excited because sometimes individual is a euphemism for disabled person, "an individual raising a child with autism, you must be going through hell now that this disease has struck. But you know what they say--if you're going through hell, keep going."
Nice.
At the same time, this is completely ordinary and unsurprising. It's not like I was like, "Oh poor Ari having to listen to that" because I constantly hear that stuff in the real world, and you probably do too. For me, it's not even the hell thing or the disease thing, it's the completely ignorance that people with disabilities have feelings. Seriously, if he'd just said "autism is a terrible unbearable disease and it must be hell for the people who have autism," that would be something. But no. People with disabilities aren't upset or not upset; we just...aren't there.
Then as I watched the rest of the meeting, two things happened:
1. Ari would reframe stuff. For example, Geraldine Dawson from Autism Speaks presented research which included the fact that a lot of ASD people have some form of mental illness and a lot of ASD people are on psychotropic drugs. Ari said something like, "The amount of people with developmental disabilities who have mental illness isn't as high as the amount of people with DD who are on psychotropic drugs. Are you studying how many people are being inappropriately given drugs as restraints?"
This was really neat because just as Francis Collins (the going through hell guy) was coming from a perspective of assuming that everyone thinks autism is awful (and that everyone who thinks or feels anything does not have autism), Ari was talking as if he assumed that everyone a)thought of autism as a developmental disability, not a disease, and b)was really interested in people with DDs being treated ethically.
2. During the public comment section, two people with ASD talked.
Both of these things made me very excited and led to my feeling of happiness when I woke up today. Usually when I hear the word "autism," I don't feel at all safe or welcomed and I don't think that the things that are going to be talked about are things that are important to me. Some of the people who were at the IACC meeting thought it was a meeting about Autism the Horrible Disease. But other people thought it was a meeting about Autism the Disability, and both kinds of people got a chance to talk.
"can an autistic person seem smart and be an asshole"
Hopefully their question is now answered. Also I wanted to apologize because it's Blog Against Disablism Day and I figured I'd get angry about something and be able to write about it, but today I woke up feeling incredibly happy. I think my uncomfortable fallacy post from a few weeks ago is a good post about a particular kind of ableism. Amanda Baggs's BADD post If only, oh if only is a really good post about feeeeeelings, which I'm sure is the subject I would have ended up writing about if I had been in the mood.
But: why I'm incredibly happy. Yesterday I watched the live webcast of the Interagency Autism Coordinating Committee. As it says in my sidebar, any discussion of policy goes completely over my head so I'm not going to try to talk about the IACC meeting in an intelligent way. You should read the transcript or watch the video when they go up on the IACC website.
I was basically watching it because Ari is on it now and I was interested to see how he did. And of course I was a bit scared for him because I don't feel safe about that kind of people. About the time I started watching, a guy was making a big speech that I wish I could remember more accurately, but it contained basically every awful thing you could say in a really short period of time. "If you're a parent, or just any person, or an individual," he said, and I got excited because sometimes individual is a euphemism for disabled person, "an individual raising a child with autism, you must be going through hell now that this disease has struck. But you know what they say--if you're going through hell, keep going."
Nice.
At the same time, this is completely ordinary and unsurprising. It's not like I was like, "Oh poor Ari having to listen to that" because I constantly hear that stuff in the real world, and you probably do too. For me, it's not even the hell thing or the disease thing, it's the completely ignorance that people with disabilities have feelings. Seriously, if he'd just said "autism is a terrible unbearable disease and it must be hell for the people who have autism," that would be something. But no. People with disabilities aren't upset or not upset; we just...aren't there.
Then as I watched the rest of the meeting, two things happened:
1. Ari would reframe stuff. For example, Geraldine Dawson from Autism Speaks presented research which included the fact that a lot of ASD people have some form of mental illness and a lot of ASD people are on psychotropic drugs. Ari said something like, "The amount of people with developmental disabilities who have mental illness isn't as high as the amount of people with DD who are on psychotropic drugs. Are you studying how many people are being inappropriately given drugs as restraints?"
This was really neat because just as Francis Collins (the going through hell guy) was coming from a perspective of assuming that everyone thinks autism is awful (and that everyone who thinks or feels anything does not have autism), Ari was talking as if he assumed that everyone a)thought of autism as a developmental disability, not a disease, and b)was really interested in people with DDs being treated ethically.
2. During the public comment section, two people with ASD talked.
Both of these things made me very excited and led to my feeling of happiness when I woke up today. Usually when I hear the word "autism," I don't feel at all safe or welcomed and I don't think that the things that are going to be talked about are things that are important to me. Some of the people who were at the IACC meeting thought it was a meeting about Autism the Horrible Disease. But other people thought it was a meeting about Autism the Disability, and both kinds of people got a chance to talk.
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