22 September, 2013


There's something I think about when I see parents of disabled kids fussing about how disabled people should be more tolerant of murder or whatever other crappy things parents want to do. What I think about it is not going to change the mind of that kind of person, but it's still something I think about.

I am never going to be able to spend a single second of my life away from a disabled person and I am never going to be able to spend a second not thinking about how to manage my disability. I didn't get to spend the first few decades of my life without a disability. I don't get to walk out of the room away from the disabled person who I am the only caregiver for. I don't get to send the person to respite so I can get a break.

Yes of course it can still be tough and a lot of work to take care of someone, even if you can walk out of the room and take a break for a few hours or even for months or a year. But I don't need to put myself in a parent's shoes, because I've been doing it longer and harder.

1 comment:

  1. Brilliant observation. So simple, and seemingly obvious, but often overlooked.