22 December, 2015

Uncanny Valley Blues

This is just a vent with no political or artistic import. Here I sit, watching my boss's dad Richard wait on the phone with Covered California, the Obamacare organization. For the last few years Richard has occupied the thankless position of being my unpaid, uncredited support worker in matters of bureaucracy. I can't manage them myself due to difficulties using phones, approaching long chains of tasks, and regulating emotions (i.e. when under a lot of stress I usually zone out and can't do much).

Medi-Cal (Medicaid in California) has decided to occupy themselves this holiday season by mailing me some forms and demanding that I complete them in a week or else. Now, I certainly am unable to do this--they're requesting tons of things that would each individually be something I could only do on the best of all possible days. I guess Richard could theoretically do it if it was an emergency, but it wouldn't be very realistic for him either since he has plenty of things to manage aside from tracking down copies of every insurance check I've mailed in the past year.

But aside from the general obnoxiousness, there's the small detail that I am not on Medi-Cal, nor have I applied for it. I exceed the maximum income limit, and I never seriously considered applying for it even when I made less money. Well, I thought about the disabled workers program, but then an Autistic friend applied for it and was denied for not having an intellectual disability, which is pretty much like telling someone they're not blind because they can hear. After that happened to her, I wasn't going to bother. That was years ago.

But for some reason I'm hearing from Medi-Cal because they want to evaluate me, even though I make too much money and they already have that information without me, i.e. Richard, doing any of this busywork they've assigned. After Richard sits on the phone with them forever, we find out that they sent me all these forms because I said I was disabled when signing up for insurance.

Let's review: according to the ADA, a disability is a physical or mental impairment that limits a major life activity. Check. My disability is also on the list of disabilities that can qualify you for disability if you cannot work, the working disabled program if you can, a disability bus fare, and so on. I've been diagnosed with autism twice and I have the paperwork. I'm not applying for any of these things, though, like I said, since I am not eligible for most of them and when it comes to other ones, like free bus fare, it would be a lot of work to pour into something that I might not get. But. I am, objectively, disabled.

A few years ago I used to get upset about the fact that I'm unlikely to ever qualify for any services for my disability. I'd get upset because of the practicalities--I have to recruit other people to unofficially help me, which is difficult for many reasons, not least because of aspects of my disability--but mostly because it was extremely overwhelming and distressing to feel like the reality of my life was being dismissed. I stopped talking and writing about this not because the situation or my feelings improved, but because I realized it was not helpful to dwell on something that made me so upset. Besides, I'm really lucky to have so many helpful people in my life, and that's what I should focus on.

And when it comes to Medi-Cal, I do not want it because I don't need it. I hadn't been at all surprised when the Covered California website said I wasn't eligible. That was the end of it. But apparently, a disabled person who isn't eligible for Medi-Cal isn't even allowed to exist and to just answer yes on a form that asks if I am disabled, just as I enter other information about myself like my gender and race. Instead, I have to be badgered with tasks I cannot even do for having the gumption to identify as disabled when the healthcare system doesn't consider me to be so.

1 comment:

  1. Can't think of a single helpful thing to say. But I hear you. You make a lot of sense.